Rare Disease Day – 29th February

Rare disease day falls on the last day of February every year, and this year on the even rarer 29th February, a leap day. The purpose of Rare Disease Day is to raise awareness for people living with a rare disease. A rare disease is defined by the European Union as one that affects less than 5 in 10,000 of the general population, and altogether there are 6000 recognised rare diseases. Diseases range from Duchenne muscular dystrophy and cystic fibrosis to Opitz trigonocephaly syndrome, which affects approximately 1 in a million people. Both the incidence and the range of diseases is why it is important to raise awareness using a global approach.


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